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PWE-063 Annual Review of Patients with Coeliac Disease in The Community? – A Patient Survey
  1. E Copeland1,
  2. J Smith2,
  3. K Eaton1,
  4. S Gupta3,3
  1. 1Dietetics, Croydon University Hospital
  2. 2Representative, Coeliac UK
  3. 3Gastroenterology, Croydon University Hospital, Croydon, Surrey, UK

Abstract

Introduction Patients with stable coeliac disease in Croydon are discharged back to their General Practitioners with a yearly follow-up protocol. We conducted a patient survey to evaluate its uptake and to ascertain the views of patients about their follow-up.

Methods An online survey was designed and sent to all patients registered with Croydon group of Coeliac UK and had an e-mail address in February 2015. A reminder was sent to all members after 6 weeks. The responses were computed in May 2015, presented to Croydon Coeliac UK members and sent to the CCG. Paper copies were also given out at a group meeting.

Results Of the 233 registered members, the survey questionnaire was sent electronically to about 200 patients at 9 post codes in Croydon. There were 101 responses of which 82 were complete. 94% responders were over 18 years of age. 60% patients never received an appointment from their GP for an annual follow-up (n = 84). Only 50% patients had a follow-up in the previous year. Most recent review was conducted by GP in 37% cases, GP practice nurse in 8%, Deititian in 20%, local gastroenterologist 32% (n = 76). Overall 80% patients had seen a dietitian (n = 85). 70% (n = 87) had been offered DEXA scan for bone mineral density. About 65% had a blood test in the last year (n = 87). Calcium, haematinics, vitamin D, coeliac antibodies were checked in about 40–50% patients (n = 34) with 66% receiving feedback on the results (n = 47). Apart from enquiry about gluten free diet in 78% cases, all other questions relating to coeliac disease were discussed in less than 40% cases (n = 60). Vaccinations were discussed in only 8% cases and membership of Coeliac UK in 18%. Only 43% of patients were offered a yearly follow-up while 7% were referred to the hospital gastroenterologist (n = 57).

When asked about the expectations of patients, 90% wanted an annual follow-up (n = 78) with 37% preferring to see their GP, 9% GP practice nurse, 21% dietitians, 27% gastroenterologist (n = 75). Of the 77 respondents, 46% said they would be happy to attend dietitian led group sessions, 38% preferred not to while 17% had no opinion.

Conclusion The annual follow-up of patients with coeliac disease in the community is patchy. The quality of this appointment is also inadequate. If these results can be replicated more widely, there may be a place for specialist community clinics with links between GP, dietitians and local gastroenterologists.

Disclosure of Interest None Declared

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