Inflammatory bowel disease questionnaire (IBDQ) scores for patients on home parenteral nutrition (HPN) and those not
| HPN | non-HPN | p Value | |
|---|---|---|---|
| Bowel symptoms | |||
| Bowel movement frequency | 7.0 (4.0–7.0) | 7.0 (4.0–7.0) | 0.57 |
| Loose bowel movements | 1.0 (1.0–6.2) | 3.0 (1.0–4.0) | 0.02 |
| Cramps in abdomen | 7.0 (3.0–7.0) | 7.0 (6.0–7.0) | 0.19 |
| Pain in abdomen | 4.0 (2.0–7.0) | 7.0 (5.0–7.0) | 0.01 |
| Passing gas | 7.0 (5.0–7.0) | 7.0 (3.0–7.0) | 0.16 |
| Abdominal boating | 7.0 (3.3–7.0) | 7.0 (3.3–7.0) | 0.99 |
| Rectal bleeding | 7.0 (7.0–7.0) | 7.0 (7.0–7.0) | 0.47 |
| Bathroom though bowel empty | 7.0 (7.0–7.0) | 7.0 (7.0–7.0) | 0.59 |
| Accidental soiling of underpants | 7.0 (4.0–7.0) | 7.0 (4.0–7.0) | 0.85 |
| Feeling sick to the stomach | 5.0 (4.0–7.0) | 7.0 (6.5–7.0) | 0.02 |
| Total | 5.2 (4.8–6.1) | 5.7 (4.9–6.4) | 0.08 |
| Systemic symptoms | |||
| Feeling of fatigue/tiredness | 4.0 (2.0–5.0) | 4.0 (3.0–7.0) | 0.047 |
| Feeling of energy | 3.0 (2.0–4.0) | 3.3 (3.0–4.0) | 0.056 |
| General unwell feeling | 4.0 (3.0–6.8) | 4.5 (3.0–7.0) | 0.20 |
| Poor sleeping or frequent wakening | 3.0 (1.0–7.0) | 4.0 (3.0–7.0) | 0.02 |
| Problems to maintain weight | 7.0 (6.0–7.0) | 7.0 (7.0–7.0) | 0.42 |
| Total | 3.8 (2.8–5.4) | 5.2 (3.9–5.9) | 0.008 |
| Emotional function | |||
| Frustrated, impatient, restless | 5.5 (3.0–7.0) | 7.0 (4.0–7.0) | 0.11 |
| Worries of new surgery | 7.0 (5.0–7.0) | 7.0 (4.5–7.0) | 0.45 |
| Fear of not finding washroom | 7.0 (4.8–7.0) | 7.0 (4.0–7.0) | 0.83 |
| Feeling depressed or discouraged | 5.0 (3.0–7.0) | 7.0 (4.0–7.0) | 0.11 |
| Worries of cancer or illness | 7.0 (6.0–7.0) | 7.0 (7.0–7.0) | 0.26 |
| Relaxed and free of tension | 3.0 (1.0–5.8) | 4.0 (3.0–6.0) | 0.057 |
| Embarrassment due to bowel disease | 7.0 (7.0–7.0) | 7.0 (4.0–7.0) | 0.13 |
| Feeling tearful or upset | 6.0 (4.0–7.0) | 7.0 (6.0–7.0) | 0.066 |
| Anger due to bowel disease | 6.0 (3.0–7.0) | 7.0 (6.3–7.0) | 0.01 |
| Irritability | 5.0 (4.0–7.0) | 5.5 (4.0–7.0) | 0.44 |
| Lack of understanding from others | 7.0 (4.0–7.0) | 7.0 (6.8–7.0) | 0.41 |
| Feeling satisfied, happy, pleased | 4.0 (3.0–5.0) | 5.0 (4.0–5.0) | 0.046 |
| Total | 5.3 (4.4–6.2) | 5.8 (5.4–6.4) | 0.04 |
| Social function | |||
| Work | 1.0 (1.0–1.0) | 1.0 (1.0–7.0) | 0.15 |
| Delay/cancel social arrangements | 7.0 (4.5–7.0) | 7.0 (7.0–7.0) | 0.15 |
| Difficulties in leisure/sports activities | 5.0 (1.0–7.0) | 7.0 (2.5–7.0) | 0.12 |
| Avoiding events with no washroom close at hand | 7.0 (7.0–7.0) | 7.0 (7.0–7.0) | 0.42 |
| Limitations in sexual activity | 1.0 (1.0–6.0) | 1.0 (1.0–6.0) | 1.00 |
| Total | 4.3 (3.4–5.5) | 4.8 (4.5–5.8) | 0.03 |
| Overall | 5.0 (4.3–5.7) | 5.6 (4.8–6.2) | 0.03 |
The scores of each aspect are given as median (25–75%) on a seven point scale. 7 represents best function and 1 represents worst function. The Mann-Whitney rank sum test was used for comparison between groups.