Inflammatory bowed disease (IBD) specific health related quality of life (HRQOL) instruments
| Validity | Reliability | |||||||
|---|---|---|---|---|---|---|---|---|
| Instrument | Items/scoring8-150 | Domains | Face | Content | Construct | IC | TR | |
| IBDQ12,55, 59 | 32/32–224 | Bowel, systemic, social, emotional | L, E, P | 1 field test | Global rating, CDAI, HB, PGA, MDGA | 0.90 | 0.70 | |
| SIBDQ63 | 10/7–70 | Bowel, systemic, social, emotional | L, E, P | 10 IBDQ items | IBDQ, CDAI, HB | 0.65 | 0.78 | |
| RFIPC56 | 25/100–0 | Impact of disease, sexual relations, complications, body stigmata | E, P | 1 field test | SCL-90, SIP, SF-36 | 0.79–0.91 | 0.87 | |
| Not named75 | 18/0–90 | Functional/economic, social/recreation, affect/life in general, medical/symptoms | E, L | 1 field test | SIP | NT | 0.75–0.95 | |
| Not named67 | 29/87–0 | Intestinal symptoms, systemic, emotional, social | L | 1 field test | NT | NT | 15%8-160 | |
| Not named76 | 12/120–0 | NS | E | NT | NT | NT | Stable | |
↵8-150 Scores range from worst to best QOL.
↵8-160 Variation between test-retest scores in stable IBD patients.
NS, not stated; NT, not tested; IC, internal consistency (Cronbach's alpha); TR, test-retest; CDAI, Crohn's disease activity index; HB, Harvey Bradshaw index; PGA, patient reported global assessment; MDGA, physician reported global assessment.
L, literature review; E, expert opinion; P, patient interviews.