Table 3

The estimated (and extrapolated) UK prevalence of chronic paediatric GI/liver conditions and number of patients transitioned each year using the best available epidemiological, audit and survey data as well as expert opinion

GI/liver conditionUK paediatric prevalence (total population or proportion within populations)Estimated number of patients transitioned per year
IBD*70001000 (∼60% Crohn's disease)
Chronic liver diseaseThe prevalence of paediatric liver disease in England between 2008 and 2014:
11–15 years: 1502
16–17: 624†17
Approximately 61–76 transplant cases per annum‡18
753 paediatric patients were transferred to adult services between 2008 and 2014) (proportion which are non-transplant is unknown)†17
Complex enteralNo relevant data identifiedNo relevant data identified
Parenteral nutrition (combination of long term in and out of hospital)290§60
Coeliac disease3–13 per 1000 children, or approximately 1:80 to 1:300 children600 per year
Allergic/eosinophilic oesophagitisFood allergy 0.6%4
Eosinophilic oesophagitis 0.2 per 100 000
No specific data
Functional GI disease∼10%5No specific data
  • *Estimates derived from the organisational IBD audit 2013 and local figures (RKR).

  • †Williams et al.17

  • ‡Data from annual report on liver transplantation NHS England September 2014 (2004–2014).

  • §Data courtesy of Henry Gowens/Andy Barclay British Intestinal Failure Survey data (unpublished 2014).