The estimated (and extrapolated) UK prevalence of chronic paediatric GI/liver conditions and number of patients transitioned each year using the best available epidemiological, audit and survey data as well as expert opinion
| GI/liver condition | UK paediatric prevalence (total population or proportion within populations) | Estimated number of patients transitioned per year |
|---|---|---|
| IBD* | 7000 | 1000 (∼60% Crohn's disease) |
| Chronic liver disease | The prevalence of paediatric liver disease in England between 2008 and 2014: 11–15 years: 1502 16–17: 624†17 | Approximately 61–76 transplant cases per annum‡18 753 paediatric patients were transferred to adult services between 2008 and 2014) (proportion which are non-transplant is unknown)†17 |
| Complex enteral | No relevant data identified | No relevant data identified |
| Parenteral nutrition (combination of long term in and out of hospital) | 290§ | 60 |
| Coeliac disease | 3–13 per 1000 children, or approximately 1:80 to 1:300 children | 600 per year |
| Allergic/eosinophilic oesophagitis | Food allergy 0.6%4 Eosinophilic oesophagitis 0.2 per 100 000 | No specific data |
| Functional GI disease | ∼10%5 | No specific data |
*Estimates derived from the organisational IBD audit 2013 and local figures (RKR).
†Williams et al.17
‡Data from annual report on liver transplantation NHS England September 2014 (2004–2014).
§Data courtesy of Henry Gowens/Andy Barclay British Intestinal Failure Survey data (unpublished 2014).